Trauma informed participatory research: Reflections on co-producing a research proposal

Main Article Content

Sarah Lonbay
Amy Pearson
Emma Hamilton
Pat Higgins
Emma Foulkes
Michelle Glascott

Abstract

This article discusses the development of a co-produced research proposal. The authors reflect on the process of this work and some of the challenges that were experienced by a team who had a mix of lived, clinical and academic experience of the research topic. We highlight the need to embed trauma informed principles into co-produced research and the ways in which doing so can support the development of co-produced work. As such, the article focuses on how we established safety, choice, collaboration, trustworthiness and empowerment during the process of developing the proposal. Within this we offer our reflection on some of the challenges we experienced and our learning from undertaking this work.

Article Details

Section
Practice-based articles (Non-refereed)
Author Biographies

Sarah Lonbay

Senior Lecturer, School of Social Sciences, Faculty of Education and Society, Sunderland University, UK

Amy Pearson

Senior Lecturer, School of Psychology, Faculty of Health Sciences and Wellbeing, Sunderland University, UK

Michelle Glascott

Nurse Consultant, Adult Acute Care, Tyne & Wear NHS Trust, Cumbria, Northumberland

References

Aldridge, J. (2017) ‘Advancing participatory research’, Participatory research, 1(October 2017), pp. 149–160. doi: 10.2307/j.ctt1t8933q.11.
Aluli-Meyer, M. (2006) ‘Changing the Culture of Research: An Introduction to the Triangulation of Meaning’, Hūlili: Multidisciplinary Research on Hawaiian Well-Being, 3(1), pp. 260–280.
Botha, M., Hanlon, J. and Williams, G. . (2021) ‘Does language matter? Identity-first versus person-first language use in autism research: A response to Vivanti.’, Journal of Autism and Developmental Disorders, 1-9. Being(1), pp. 263–279. doi: https://doi.org/10.1007/s10803-020-04858-w.
Bottema-Beutal, K. et al. (2021) ‘Avoiding ableist language: Suggestions for autism researchers.’, Autism in Adulthood, 3(1), pp. 18–29. doi: 10.1111/papt.12248.
Fanjoy, M. and Bragg, B. (2019) ‘Embracing complexity: Co-creation with retired immigrant women’, Gateways: International Journal of Community Research and Engagement, 12(1), pp. 1–16. doi: 10.5130/ijcre.v12i1.6342.
Hall, B. and Tandon, R. (2020) ‘“Editorial: Knowledge democracy for a transforming world”.’, Gateways: International Journal of Community Research and Engagement, 13(1), pp. 1–15. doi: https://doi.org/10.5130/ijcre.v13i1.7225.
Holmes, M. (2010) ‘The emotionalization of reflexivity’, Sociology, 44(1), pp. 139–154. doi: 10.1177/0038038509351616.
Jowett, S., Karatzias, T. and Albert, I. (2019) ‘Multiple and interpersonal trauma are risk factors for both post‐traumatic stress disorder and borderline personality disorder: A systematic review on the traumatic backgrounds and clinical characteristics of comorbid post‐traumatic stress disorder/border’, Psychology and Psychotherapy: Theory, Research and Practice. doi: 10.1111/papt.12248.
Lambert, N. and Carr, S. (2018) ‘“Outside the Original Remit”: Co-production in UK mental health research, lessons from the field’, International Journal of Mental Health Nursing, 27(4), pp. 1273–1281. doi: 10.1111/inm.12499.
Lebow, J. (1982) ‘Consumer satisfaction with mental health treatment’, Psychological Bulletin, 9, pp. 244–259. doi: https://doi.org/10.1037/0033-2909.91.2.244.
Lonbay, S. P. et al. (2020) ‘Enhancing Educator by Experience led social work training : Lessons learned from the development of a Teaching Partnership Funded Project Enhancing Educator by Experience led social work training : Partnership Funded Project’, Social Work Education, 00(00), pp. 1–17. doi: 10.1080/02615479.2020.1843615.
Michael, C. (2021) ‘Is being othered a co-occuring condition of autism?’, Autism in Adulthood. doi: https://doi.org/10.1089/aut.2021.0019.
Mitchel, E. (2013) The Sick Role, NHS. Available at: https://www.england.nhs.uk/blog/ed-mitchell-2 (Accessed: 21 July 2020).
Rumball, F., Happé, F. and Grey, N. (2020) ‘Experience of Trauma and PTSD Symptoms in Autistic Adults: Risk of PTSD Development Following DSM-5 and Non-DSM-5 Traumatic Life Events’, Autism Research, pp. 1–11. doi: 10.1002/aur.2306.
Russo, J. and Beresford, P. (2015) ‘Between exclusion and colonisation: seeking a place for mad people’s knowledge in academia’, Disability and Society, 30(1), pp. 153–157. doi: 10.1080/09687599.2014.957925.
Wilcock, A. and Quaid, S. (2018) Exploring the Dynamics of Situated emotionality in Feminist Standpoint Epistemology. Sunderland. Available at: https://www.sunderland.ac.uk/images/external-websites/www/research/institutes/Wilcock-and-Quaid-CASS-Working-Paper.pdf.