Community-based research decision-making: Experiences and factors affecting participation
Keywords: governance, decision-making, community-based research, public participation, Arnstein
Ansell, C & Gash, A 2008, 'Collaborative governance in theory and practice', Journal of Public Administration Research and Theory, vol. 18, no. 4, pp. 54371. http://dx.doi.org/10.1093/jopart/mum032
Arnstein, S 1969, 'A ladder of citizen participation', Journal of the American Planning Association, vol. 35, no. 4, pp. 21624.
Barrington Research Group 2004, Community-University Research Alliances (CURA) program: Analysis of data contained within the Milestone and Year 1 Reports, Social Sciences and Humanities Research Council, Ottawa, Canada.
Beyrer, C & Kass, N 2002, 'Human rights, politics, and reviews of research ethics', The Lancet, vol. 360, no. 9328, pp. 24651. http://dx.doi.org/10.1016/S0140-6736(02)09465-5
Brown, E, Holtby, S, Zahnd, E & Abbott, G 2005, 'Community-based participatory research in the California Health Interview Survey', Preventing Chronic Disease: Public Health Research, Practice and Policy, vol. 2, no. 4, pp. 18e.
Callon, M 1999, 'The role of lay people in the production and dissemination of scientific knowledge', Science, Technology and Society, vol. 4, no. 1, pp. 8194. http://dx.doi.org/10.1177/097172189900400106
Cargo, M & Mercer, S 2008, 'The value and challenges of participatory research: Strengthening its practice', Annual Review of Public Health, vol. 29, pp. 32550. http://dx.doi.org/10.1146/annurev.publhealth.29.091307.083824
Centers for Disease Control and Prevention 2008, U.S. Public Health Service Syphilis Study at Tuskegee, viewed 4 September 2013, www.cdc.gov/tuskegee/.
Charmaz, K 2006, Constructing grounded theory: A practical guide through qualitative analysis, Sage, London.
Charmaz, K 2009, 'Shifting the grounds: Constructivist grounded theory methods', in J Morse, P Noerager Stern, J Corbin, B Bowers, K Charmaz & A Clarke (eds), Developing grounded theory: The second generation, Left Coast Press Inc, Walnut Creek, CA, pp. 12754.
Chrislip, D & Larson C 1994, Collaborative leadership: How citizens and civic leaders can make a difference, Jossey-Bass, San Francisco.
Cornwall, A 1996, 'Towards participatory practice: Participatory rural appraisal and the participatory process', in K de Koning & M Martin (eds), Participatory research in health: Issues and experiences, Zed Books, London.
Cornwall, A 2008, 'Unpacking participation" models' meanings and practices', Community Development Journal, vol. 43, no. 3, pp. 26983." http://dx.doi.org/10.1093/cdj/bsn010
Cornwall, A & Jewkes, R 1995, 'What is participatory research?', Social Science & Medicine, vol. 41, no. 12, pp. 166776. http://dx.doi.org/10.1016/0277-9536(95)00127-S
Dietz, T & Stern, P 2008, Public participation in environmental assessment and decision making, National Academies Press, Washington, DC.
Flinders, M 2002, 'Governance in Whitehall', Public Administration, vol. 80, no. 1, pp. 5175. http://dx.doi.org/10.1111/1467-9299.00294
Fung, A 2006, 'Varieties of participation in complex governance', Public Administration Review, vol. 66, no. 1, suppl., pp. 6675s. http://dx.doi.org/10.1111/j.1540-6210.2006.00667.x
Fung, A 2007, 'Democratic theory and political science: A pragmatic method of constructive engagement', American Political Science Review, vol. 101, no. 3, pp. 44358. http://dx.doi.org/10.1017/S000305540707030X
Gibbons, M, Limoges, C, Nowotny, H, Schwartzman, S, Scott, P & Trow, M 1994, The new production of knowledge: The dynamics of science and research in contemporary societies, Sage, London.
Gray, B 1989, Collaborating: Finding common ground for multiparty problems, Jossey-Bass, San Francisco, CA.
Green, L, George, M, Daniel, M, Frankish, C, Herbert, C, Bowie, W & O'Neil, M 1995, Study of participatory research in health promotion: Review and recommendations for the development of participatory research in health promotion in Canada, Royal Society of Canada, Ottawa, Canada.
Gustafsson, U & Driver, S 2005, 'Parents, power and public participation: Sure Start, an experiment in New Labour governance', Social Policy & Administration, vol. 39, no. 5, pp. 52843. http://dx.doi.org/10.1111/j.1467-9515.2005.00454.x
Hall, B, Tremblay, C & Downing, R 2009, The funding and development of community university research partnerships in Canada: Evidence-based investment in knowledge, engaged scholarship, innovation and action for Canada's future, Office of Community-Based Research, University of Victoria, Victoria, Canada.
Hatch, J, Moss, N, Saran, A, Presley-Cantrell, L & Mallory, C 1993, 'Community research: Partnership in black communities', American Journal of Preventive Medicine, vol. 9, no. 6, suppl., pp. 2734s.
Horowitz, C, Robinson, M & Seifer, S 2009, 'Community-based participatory research from the margin to the mainstream: Are researchers prepared?', Circulation, vol. 119, no. 19, pp. 263342. http://dx.doi.org/10.1161/CIRCULATIONAHA.107.729863
Ibá-ez-Carrasco, F & Ria-o-Alcalá, P 2011, 'Organizing community-based research knowledge between universities and communities: Lessons learned', Community Development Journal, vol. 46, no. 1, pp. 7288.
Irwin, A & Wynne, B 1996, Misunderstanding science? The public reconstruction of science and technology, Cambridge University Press, Cambridge. http://dx.doi.org/10.1017/CBO9780511563737
Israel, B, Schulz, A, Parker, E & Becker, A 1998, 'Review of community-based research: Assessing partnership approaches to improve public health', Annual Review of Public Health, vol. 19, no. 1, pp. 173202. http://dx.doi.org/10.1146/annurev.publhealth.19.1.173
Israel, B, Schulz, A, Parker, E, Becker, A, Allen III, A & Guzman, J 2003, 'Critical issues in developing and following community-based participatory research principles', in M Minkler & N Wallerstein (eds), Community-based participatory research for health, Jossey-Bass, San Francisco, pp. 5376.
Jasanoff, S 2007, 'Technologies of humility', Nature, vol. 450, p.33. http://dx.doi.org/10.1038/450033a
Kaufmann D, Kraay A & Zoido-Lobatón P 2000, 'Governance matters: From measurement to action', Finance and Development, vol. 37, no. 2, pp. 1013.
Koné, A, Sullivan, M, Senturia, K, Chrisman, N, Ciske, S & Krieger, J 2000, 'Improving collaboration between researchers and communities', Public Health Reports, vol. 115, nos 23, pp. 24348. http://dx.doi.org/10.1093/phr/115.2.243
Lantz, P, Israel, B, Schulz, A & Reyes, A 2006, 'Community-based participatory research: Rationale and relevance for social epidemiology', in J Oakes & J Kaufman (eds), Methods in social epidemiology, Jossey-Bass, San Francisco, CA, pp. 23966.
Mattessich, P, Murray-Close, M & Monsey, B 2004, Collaboration: What makes it work. A review of the research literature on factors influencing successful collaboration, 2nd edn (Featuring: The Wilder Collaboration Factors Inventory), Amherst H Wilder Foundation, St Paul, MN.
Minkler, M 2004, 'Ethical challenges for the Outside" researcher in community based participatory research', Health Education & Behavior, vol. 31, no. 6, pp. 68497." http://dx.doi.org/10.1177/1090198104269566
Minkler, M & Wallerstein, N 2008, Community-based participatory research for health: From process to outcomes, 2nd edn, Jossey-Bass, San Francisco, CA.
Mykhalovskiy, E & McCoy, L 2002, 'Troubling ruling discourses of health: Using institutional ethnography in community-based research', Critical Public Health, vol. 12, no.1, pp. 1737. http://dx.doi.org/10.1080/09581590110113286
Myser, C 2004, 'Community-based participatory research in United States bioethics: Steps toward more democratic theory and policy', American Journal of Bioethics, vol. 4, no. 2, pp. 6768. http://dx.doi.org/10.1162/152651604323097899
Oberly, J & Macedo, J 2004, 'The R word in Indian country: Culturally appropriate commercial tobacco-use research strategies', Health Promotion Practice, vol. 5, no. 4, pp. 35561. http://dx.doi.org/10.1177/1524839904267391
O'Fallon, L & Dearry, A 2002, 'Community-based participatory research as a tool to advance environmental health sciences', Environmental Health Perspectives, vol. 110, suppl. 2, pp. 15559s. http://dx.doi.org/10.1289/ehp.02110s2155
Pretty, J 1995, 'Participatory learning for sustainable agriculture', World Development, vol. 23, no. 8, pp. 124763. http://dx.doi.org/10.1016/0305-750X(95)00046-F
Provan, K & Kenis, P 2008, 'Modes of network governance: Structure, management, and effectiveness', Journal of Public Administration Research and Theory, vol. 18, no. 2, pp. 22952. http://dx.doi.org/10.1093/jopart/mum015
Provan, K, Nakama, L, Veazie, M, Teufel-Shone, N & Huddleston, C 2003, 'Building community capacity around chronic disease services through a collaborative interorganizational network', Health Education & Behavior, vol. 30, no. 6, pp. 64662. http://dx.doi.org/10.1177/1090198103255366
Ravetz, J 1971, Scientific knowledge and its social problems, Oxford University Press, New York.
Sandelowski, M 1998, 'Writing a good read: Strategies for re-presenting qualitative data', Research in Nursing & Health, vol. 21, no. 4, pp. 37582.
Sandelowski, M 2000, 'Focus on research methods: Whatever happened to qualitative description?', Research in Nursing and Health, vol. 23, no. 4, pp. 33440. http://dx.doi.org/10.1002/1098-240X(200008)23:4 & lt;334::AID-NUR9 & gt;3.0.CO;2-G
Sloat, A 2003, 'The preparation of the governance White Paper', Politics, vol. 23, no. 2, pp.12836. http://dx.doi.org/10.1111/1467-9256.00188
Smith, L 1999, Decolonizing methodologies: Research and Indigenous peoples, Zed Books, London.
Stoecker, R 2009, 'Are we talking the walk of community-based research?' Action Research, vol. 7, pp. 385404. http://dx.doi.org/10.1177/1476750309340944
Stoker, G 1998, 'Governance as theory: Five propositions', International Social Science Journal, vol. 50, no. 155, pp. 1728. http://dx.doi.org/10.1111/1468-2451.00106
Williams, A, Labonte, R, Randall, J & Muhajarine, N 2005, 'Establishing and sustaining community and university partnerships: A case study of quality of life research', Critical Public Health, vol. 15, no. 3, pp. 291302. http://dx.doi.org/10.1080/09581590500372451
Metrics powered by PLOS ALM