Validation of modified forms of the PedsQL generic core scales and cancer module scales for adolescents and young adults (AYA) with cancer or a blood disorder

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dc.contributor.author Ewing, Jane en_US
dc.contributor.author King, Madeleine en_US
dc.contributor.author Smith, Narelle en_US
dc.contributor.editor en_US
dc.date.accessioned 2010-05-28T09:50:00Z
dc.date.available 2010-05-28T09:50:00Z
dc.date.issued 2009 en_US
dc.identifier 2008007889 en_US
dc.identifier.citation Ewing Jane, King Madeleine, and Smith Narelle 2009, 'Validation of modified forms of the PedsQL generic core scales and cancer module scales for adolescents and young adults (AYA) with cancer or a blood disorder', Springer, vol. 18, no. 2, pp. 231-244. en_US
dc.identifier.issn 0962-9343 en_US
dc.identifier.other C1 en_US
dc.identifier.uri http://hdl.handle.net/10453/9489
dc.description.abstract To validate two health-related quality of life (HRQOL) measures, the PedsQL Generic Core and Cancer Module adolescent forms (13-18 years), after modification for 16-25-year-old adolescents and young adults (AYA) with cancer or a blood disorder. AYA patients and nominated proxies were recruited from three Sydney hospitals. Modified forms were administered by telephone or in clinics/wards. Analyses included correlations, factor analysis, and analysis of variance of known-groups (defined by the Memorial Symptom Assessment Scale). Eighty-eight patients and 79 proxies completed questionnaires. Factor structures consistent with those of the unmodified forms confirmed construct validity. Cronbach's alpha ranged 0.81-0.98. Inter-scale correlations were as hypothesized, confirming discriminant validity. Statistically significant differences between groups with mild, moderate, and severe symptoms (P < 0.05) confirmed clinical validity. These modified forms provide reliable and valid measures of HRQOL in AYA with cancer or a blood disorder, suitable for clinical trials, research, and practice. en_US
dc.language en_US
dc.publisher Springer en_US
dc.relation.isbasedon http://dx.doi.org/10.1007/s11136-008-9424-4 en_US
dc.title Validation of modified forms of the PedsQL generic core scales and cancer module scales for adolescents and young adults (AYA) with cancer or a blood disorder en_US
dc.parent Quality of Life Research en_US
dc.journal.volume 18 en_US
dc.journal.number 2 en_US
dc.publocation Dordrecht, The Netherlands en_US
dc.identifier.startpage 231 en_US
dc.identifier.endpage 244 en_US
dc.cauo.name BUS.Faculty of Business en_US
dc.conference Verified OK en_US
dc.for 111700 en_US
dc.personcode 014425 en_US
dc.personcode 020118 en_US
dc.personcode 921144 en_US
dc.percentage 100 en_US
dc.classification.name Public Health and Health Services en_US
dc.classification.type FOR-08 en_US
dc.edition en_US
dc.custom en_US
dc.date.activity en_US
dc.location.activity ISI:000263178700011 en_US
dc.description.keywords Quality of life; Adolescents; Validation studies; Cancer; Blood disorder; Proxy en_US
dc.staffid 921144 en_US


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