Abstract:
This study explores factors that influence participation in genetic testing programs and the acceptance
of multiple tests. Tay Sachs and cystic fibrosis are both genetically determined recessive disorders with
differing severity, treatment availability, and prevalence in different population groups. We used a discrete
choice experiment with a general community and an Ashkenazi Jewish sample; data were analysed using
multinorniallogit with random coefficients. Although Jewish respondents were more likely to be tested, both
groups seem to be making very similar tradeoffs across attributes when they make genetic testing choices.
