Narratives of the heart: telling the story of children with a cardiac condition through a bead program

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dc.contributor.author Redshaw, Sarah en_US
dc.contributor.author Scarfe, Gabbie en_US
dc.contributor.author Dengler, Kate en_US
dc.contributor.author Wilson, Val en_US
dc.contributor.editor en_US
dc.date.accessioned 2012-02-10T06:09:46Z
dc.date.available 2012-02-10T06:09:46Z
dc.date.issued 2011 en_US
dc.identifier 2010005339 en_US
dc.identifier.citation Redshaw Sarah et al. 2011, 'Narratives of the heart: telling the story of children with a cardiac condition through a bead program', Blackwell Publishing Ltd, vol. 20, no. 19-20, pp. 2802-2811. en_US
dc.identifier.issn 0962-1067 en_US
dc.identifier.other C1 en_US
dc.identifier.uri http://hdl.handle.net/10453/17127
dc.description.abstract Aims. To present and discuss the significance of a bead program in assisting families to put together the story of a childa??s journey through cardiac intervention. The main focus of the article is the importance to families of developing a narrative in making sense of the experience of discovering their child has a cardiac condition and how this is enhanced by the bead program. Background. The Heart Beads Program involved giving families beads related to procedures and processes the children undergo while they are in hospital. Research on narratives related to illness suggests that forming a narrative that incorporates the health condition facilitates the ability to talk about these experiences and helps to make sense of and deal with the stressors related to such traumatic life events. Design. A qualitative methodology was used to evaluate the program employing semi-structured interviews and content analysis following a grounded theory approach. Methods. Interviews were undertaken with 11 families to highlight their experiences of being involved in the Heart Beads Program. Themes were identified from the interviews and critical discussion was used to structure and connect the themes. Results. The major theme that emerged from the analysis of the interviews was the importance of the beads in enabling the telling of the childa??s story. Five subthemes were identified in this theme: symbolism, encouraging/uplifting, acknowledgement, connection with others and imagining the future. The themes are outlined and expressed through specific comments from interviews. Conclusions. The Heart Beads are seen as presenting a significant way for children and families to comprehend their time in hospital as part of the childa??s life story. Relevance to clinical practice. The program can offer the opportunity for health care professionals to relate to the child and familya??s story and to engage with that story in a person centred way. en_US
dc.language en_US
dc.publisher Blackwell Publishing Ltd en_US
dc.relation.isbasedon http://dx.doi.org/10.1111/j.1365-2702.2011.03780.x en_US
dc.title Narratives of the heart: telling the story of children with a cardiac condition through a bead program en_US
dc.parent Journal Of Clinical Nursing en_US
dc.journal.volume 20 en_US
dc.journal.number 19-20 en_US
dc.publocation Oxford, UK en_US
dc.identifier.startpage 2802 en_US
dc.identifier.endpage 2811 en_US
dc.cauo.name FOH.Faculty of Health en_US
dc.conference Verified OK en_US
dc.for 111000 en_US
dc.personcode 106369 en_US
dc.personcode 998491 en_US
dc.personcode 0000066228 en_US
dc.personcode 0000066227 en_US
dc.percentage 100 en_US
dc.classification.name Nursing en_US
dc.classification.type FOR-08 en_US
dc.edition en_US
dc.custom en_US
dc.date.activity en_US
dc.location.activity en_US
dc.description.keywords beads program, children, chronic illness, grounded theory, narrative, storytelling en_US


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